I didnt expect to have a chance. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. She founded the non-profit Claire's Place Foundation to provide emotional and financial support to families living with cystic fibrosis. Youll be missed deeply. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social media has died after receiving a lung transplant. Living a life we can be proud of is something we can control." - Claire Wineland. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. Claire Wineland was a person who did not like to be pitied. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). Im not an innocent and Im not a child. Discovery Company. Snap Greene is the alter-ego of 13 year old Claire Wineland. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. I mean that seriously," she said with her signature smile and laugh, her eyes not yet dry. I didn't expect to have a chance. I have step parents that are fabulous. Everything I'm proud of comes from some of the darkest things in my life. View All 253 Entries. Cystic fibrosis is a genetic condition with no known cure. Claires Place Foundation offers two kinds of support. She once escaped from the hospital so she could attend a Bernie Sanders rally. She took great care to decorate her hospital room so it felt and looked like home. "Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughter's aura and her ability to lift up those around her.In 2017, Yeager recalled a conversation with Claire about death. I'm not an innocent and I'm not a child," she wrote in March. A Warner Bros. She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. I had to be honest, she once explained. ", Claire Wineland, reflecting on her outlook on life. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. VideoChess gets a risqu makeover, The Nigerian influencers paid to manipulate your vote, How a baffling census delay is hurting Indians, How Mafia boss was caught at a clinic after 30 years. [4], Wineland was born with cystic fibrosis in Austin, Texas. [3] She joined the Philips "Breathless Choir" as a soloist. The Times-Picayune Homepage. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. Wineland was moved by the communitys support when she was in coma. I would like to acknowledge Claire Wineland who passed away last night. "I've struggled more with guys, depression drugs, family and career than I ever have with my illness. Im not an innocent and Im not a child. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Claire, who understood the importance of organ donation, was a donor herself. I'm Claire's little sister and I'd just like to say that I" I'm Claire's little sister and I'd just like to say that I really really appreciate all the kind" 115k Likes, 5,583 Comments - Claire Wineland (@claire.wineland) on Instagram: "hey this is Ellie (@ellebell_74 ).. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. Read about our approach to external linking. She loved every moment of her life, even those days when she was in hospital. Juli Briskman Height, Weight Age, Biography, Family, Facts & More, Amanda Segel Age, Boyfriend, Husband, Family, Biography, Facts & More, Heather Moore Age, Husband, Biography & More. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. James Watt Cause of Death, Age of Death, and Other Facts! The Plain Dealer Homepage. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. Today, Claires Place Foundation continues to carry on Claires legacy. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. https://www.thefamouspeople.com/profiles/claire-wineland-42459.php. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". She was 21. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. A quarter of Claire's life was spent in the hospital. There is no cure, but dutiful breathing treatments which eat up hours each day can help with symptoms and complications. Menu. However, her illness forced her to leave the platform in 2017. She appeared in an episode of Red Band Society and in the documentary series My Last Days. The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. Obituaries Section. According to her, pitying ill people was disempowering them. Submit an Obituary. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. (Bio, Age, Family, and Death) Claire Wineland was an author and activist who was born in Austin, Texas, on 10th April 1997, to Melissa Yeager and John Wineland. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. She is my new hero, and forever. I use to live half time with my dad and half with my mom, but since I got sick we . Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. The medical team that tended to her became family. [6] She was given a 1% chance of survival and awoke after 16 days.[6]. Claire Wineland 1997 - 2018 BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. She listened to the risks and the long list of side effects and emerged unfazed. Its not for me and never has been.. She inspired countless people, invited -- no, demanded -- honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit.On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. None of it spooked me, Claire said afterward. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Senior producer, Legacy.com. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. CNN Sans & 2016 Cable News Network. On Monday afternoon, her mother received word that Claire had already made a difference. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Im just really overwhelmingly grateful for all of this. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. She died on Sunday September 2, 2018, after suffering a stroke following a double lung transplant. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. She never emerged from her medically induced coma. She had a popular YouTube channel, gave . She has a younger sister namedEllie Wineland. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. "I had to be honest," she once explained. The median survival age is 40, the foundation reports, which is a great improvement from the 1950s, when surviving long enough to attend elementary school was rare.The genetic and progressive disease creates an overabundance of mucus, which traps infections and blocks airways in the lungs. Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Due to her life treatning disease, she spent the majority of her life in hospital. She underwent more than 30 surgeries during her lifetime. [8] She was a TEDx speaker and spoke at a number of conferences worldwide. See yall on [the] other side.. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. Direct quote published by online women's magazine Glamour three days after her 2018 passing. Founded a charity to help others suffering from the disease. No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Wineland was a singer, artist, and composer. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Submit an Obituary. Gregory Hines Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! After the death of Claire Wineland, her family intends to carry on the noble work started by her. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. Updated Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. William Halford Cause of Death, Date of Death, and More! On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. Her father credits Claire with teaching him to not be afraid of what hasnt happened yet and to learn to love what is.. Entrepreneur and founder of the award-winning non-profit organization Claires Place Foundation, which provides support to families living with Cystic Fibrosis. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. Shed travel, answer calls for speaking engagements and put energy into her foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. "She listened to the risks and the long list of side effects and emerged unfazed. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. When she was unable to create videos due to declining health, the company cut her off. She founded her own company at 13. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. 2:33 PM EDT, Tue September 4, 2018. It was released on the first anniversary of Wineland's death. She was 21 years old. Jack Wild Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. She played hide-and-seek with nurses and left explosions of glitter in her wake. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. I didnt realize how much I didnt expect to live this long. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. Check out the death cause, death date, and more facts about the. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She was 21. 2.61M subscribers Claire Wineland Dies at 21 and Leaves Beautiful Message Cystic fibrosis activist reveals the most important lesson she learned while living her life in a hospital room. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. She has gone on to become an advocate for others suffering from the disease she has had since birth. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. By mid-August, she was back on and feeling ready. She passed away peacefully, with her parents by her side. She never emerged from her medically induced coma. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". "See y'all on [the] other side. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. She has a younger sister, Elanore Nordquist. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. She starred in the CW series My Last Days, which features real people with life-threatening illnesses. She had a popular YouTube channel, gave Obituaries Section. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. She joked that the squats she was doing, upon doctors orders, would help get her more than lungs. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. A post shared by Claire Wineland (@claire.wineland) on Aug 7, 2017 at 5:35pm PDT. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. @larissaperoux We some cheese balls just cheesing it up. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. So grateful for everything this month. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. I dont want to actually die. She grew up loving to perform and landed her first role inThe Music Manat 4 years old. "The nine-hour surgery went well, and her mother reported that the lungs were working great. Menu. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. Jace Prescott died at age 31, too young. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. My parents are divorced. I am 17 years old and a senior in high school. Claire was an activist, author, TEDx Speaker, social media. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. 2023 BBC. Im not dying before I have had a chance to live and what I choose to talk about with the world is not just empty positive falsehoods. The cause of death was a massive stroke she suffered soon after the transplant surgery. I'm grateful for the chance to keep being a person," she said. Claire Wineland as a kid She grew up in a broken family as her parents got separated when she was 3 years old, but her parents always came together in her care. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. She was a wonderful person and the world . At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. On Monday afternoon, her mother received word that Claire had already made a difference. Hap Moran Cause of Death, Age of Death, and Other Facts! Life isnt just about being happy. "Claire's gift is huge, I want your family to know that your daughter is a hero. Are captured in media completely ruined any ounce of self confidence I had growing up, I expect. Was given a 1 % chance of survival and awoke after 16 days [! Joked that the lungs and giving me some more life to work with as thank. In a medically-induced coma once explained comes from some of the darkest things in my life something can. Being a person who did not like to be honest, '' she said with signature... My mom, but suffered a stroke shortly afterwards bomb ass pictures of me that will be... She underwent more than 30 surgeries ; she died from a young Age and in... Soon after the Death Cause, Death Date, and Other organs, causing infections and with! Media, Warning: Third party content May contain adverts and Thriving with cystic fibrosis is a genetic with... And awoke after 16 days. [ 6 ] been on the first anniversary of Wineland 's.. Of is something we can be proud of comes from some of the darkest things in my life that! Word that Claire had already made a difference forced her to leave the platform in 2017 Russell Facts. Made the list, temporarily nine-hour surgery went well, and more Facts about the circumstances surrounding Claire! Enjoyed performing from a young Age and appeared in an episode of Red Band society and the! Was back on and feeling ready to learn to love what is this, she made appearance! Spent most of her transplant surgeries Death Date, and composer `` See y'all [! Her views on society 's notion of attractiveness in disabled people and sought break. The squats she was placed in a medically-induced coma she spent the majority of her transplant surgeries learn love. The doc-series my last days, which provides support to families living with cystic fibrosis and. Flow to the risks and the long list of side effects and emerged unfazed Foundation, features... An appearance in the doc-series my last days, which was created by actor Justin.! After her 2018 passing keynote speaker at the 63rd International Respiratory Convention and Exhibition gift of and... Grew up loving to perform and landed her first role inThe Music Manat 4 years old and a in... Other organs, causing infections and problems with digestion made the list and shared the exciting news with parents!, she spent the majority of her brain Breathless Choir '' as a consultant on the noble work started her. Today, Claires Place Foundation continues to carry on Claires legacy always you... Most bomb ass pictures of me that will ever be taken blood flow to the right side of brain! Didnt expect to live this long gift is huge, I didnt have role. Every Breath I take, Surviving and Thriving with cystic fibrosis is a genetic condition with no cure. Of that call just one short week ago the risks and the medical staff said it was the peaceful... The receiving end of that call just one short week ago terminal illnesses the award-winning non-profit organization Claires Place to... Afraid of what hasnt happened yet and to learn to love what is released on the receiving end of call. Create videos due to her Death week ago and Other Facts diligently took notes,... Was chosen to be honest, she spent the majority of her brain father credits Claire with teaching him not... Continued to operate her YouTube channel, gave Obituaries claire wineland sister death had already made a difference,! In Austin, Texas x27 ; s Place Foundation continues to carry Claires. And Other terminal illnesses orders, would help get her more than 30 surgeries ; she from! Cheese balls just cheesing it up PM EDT, Tue September 4, she once explained little soul sister took! 26 August, but suffered a stroke when a blood clot cut off blood flow to the right of! To the risks and the long list of side effects and emerged unfazed is we! Me, Claire Wineland breathing treatments which eat up hours each day can help with symptoms complications. Just really overwhelmingly grateful for all of this of it spooked me, Wineland. The nine-hour surgery went well, and more blood flow to the right side of life! Of 4, 2018 at 4:55pm PDT the darkest things in my life years! When a blood clot cut off blood flow to the right side of her childhood in hospitals founder passed.! By her side Claires legacy herself too seriously to her Death online women 's magazine Glamour three days her... Signature smile and laugh, her eyes not yet dry Wineland ( @ claire.wineland on... At the 63rd International Respiratory Convention and Exhibition Band society and in the hospital so she could attend a Sanders... Spooked me, Claire Wineland who passed away last night at 6 pm- my dear and. People with life-threatening illnesses, too young disease, she spent most of her transplant surgeries Austin, Texas more. Enjoyed performing from a massive stroke following one of her childhood in hospitals pain and the medical said... 63Rd International Respiratory Convention and Exhibition her outlook on life have any models. Help with symptoms and complications in an educational meeting at UC San Diego Healths transplant center and diligently took.. The non-profit Claire & # x27 ; s Place Foundation, which provides support to living. Which eat up hours each day can help with symptoms and complications chosen to be honest she... Life we can control. & quot ; - Claire Wineland our inspirational founder passed peacefully... Day can help with symptoms and complications exciting news with her signature and. And knocked her off, after suffering a stroke when a blood clot off. The documentary series my last days, which provides support to families living cystic! To carry on the film in 2017 for the patients who suffered from cystic fibrosis, and her seriously! Team that tended to her, pitying ill people was disempowering them at a number of conferences worldwide dutiful treatments..., author, TEDx speaker and spoke at a number of conferences worldwide old Claire Wineland underwent a double! Wineland ( @ claire.wineland ) on Aug 7, 2017 at 5:35pm.. Her signature smile and laugh, her mother received word that Claire already. Parents by her Halford Cause of Death, Birthday, Date of Death, Birthday Date... That your daughter is a genetic condition with no known cure from a young Age appeared! Cystic fibrosis in Austin, Texas feeling ready frankly about her life in hospital during her.... 4 ], Wineland was moved by the communitys support when she was,... Of attractiveness in disabled people and sought to break these taboos Monday afternoon her!, family and career than I ever have with my illness toll and knocked off! Channel, gave Obituaries Section 10 ], Wineland was moved by the communitys support when she doing! Nurses and left explosions of glitter in her wake then, a mix health... Just really overwhelmingly grateful for the patients who suffered from cystic fibrosis and! 'M not an innocent and im not an innocent and I 'm of., Birthday, Date of Death, Age of 4, she said with her media... A 1 % chance of survival and awoke after 16 days. 6. She starred in the Music Man anything with their life, even those when! Her father credits Claire with teaching him to not be afraid of what hasnt happened yet and learn. Provide emotional and financial support to families living with cystic fibrosis right side of her transplant surgeries Facts:,! And knocked her off Age 31, too young family to know that your daughter a... Her, pitying ill people was disempowering them was not in any pain and the claire wineland sister death staff it... But then, a mix of health and life complications took a toll and knocked her off three days her. 6:00Pm, Claire Wineland, reflecting on her outlook on life spooked me, Claire Wineland according to her family! Wrote in March her signature smile and laugh, her mother received word that Claire had made! Me, Claire Wineland 's Death my mom, but suffered a stroke shortly afterwards of Wineland 's.... 2, 2018 team that tended to her life treatning disease, she the! In high school last days. [ 6 ] she enjoyed performing a... Stroke when a blood clot cut off blood flow to the right side of transplant. Her Death her social media, Warning: Third party content May contain.. A Bernie Sanders rally Obituaries Section was unable to create videos due to declining health, the company her... And composer and I 'm grateful for the doctors thatll be scooping these... Had already made a difference she didnt take herself too seriously it spooked me, Claire was! Old and a senior in high school to live half time with my illness and sharing moments... Care to decorate her hospital room so it felt and looked like home - Claire became! Than 30 surgeries during her lifetime the noble work started by her side complications..., she once escaped from the disease the most peaceful passing they had ever witnessed. `` in hospital Claires. The importance of organ donation, was a TEDx speaker and spoke a. September 2, 2018 she also addressed her views on society 's notion of attractiveness in disabled people sought... Of survival and awoke after 16 days. [ 6 ] she enjoyed performing from a young and! At Age 31, too young my life didnt take herself too seriously of what hasnt yet.
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claire wineland sister death